Data sharing initiatives
About Me
Published by
Professional Records Standards Body (PRSB)
Sector
Health and social care
Information created by
The Person
Arguably the most innovative data standard there is, "About Me" was created by the Professional Records Standards Body (PRSB) to enable people to record and share the information they want health and care professionals to be aware of.
The standard has seven sections which help to provide an overall structure with setting out the information and prioritising the most important information first. Only relevant sections need to be completed, and keeping it prioritised and concise is important for busy professionals reading it. The seven sections are:
What is most important to me
People who are important to me
How I communicate and how to communicate with me
My wellness
Please do and please do not
How and when to support me
Also worth knowing about me
It can be completed with just text, or with videos/multimedia files and has implementation guidance for both users and those developing systems.
It should be owned by the person, who can update it as and when required. Ideally, it will be shared via a link so professionals access the master version, not old versions copied into local systems.
The PRSB has reiterated that "About Me" needs to be retained as a single document and not split into sections when shared. It wouldn't therefore be appropriate to copy "How I communicate and how to communicate with me" and paste it into AIS. "About Me" would flag the need for an AIS record to be created and the two could then be shared across systems in parallel as appropriate.