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Work in progress - ratings and comments are still to be finalised

Hidden Disabilities Sunflower

1.1 Stated purpose

The Hidden Disabilities Sunflower is a simple tool for you to voluntarily share that you have a disability or condition that may not be immediately apparent – and that you may need a helping hand, understanding, or more time in shops, at work, on transport, or in public spaces.

1.2 Episodic or relational

2.1 Statutory notification

2.2 Info validated by

Sector

4.1 Personal identifier used

Online portal

Offline alternative

1.3 Data included

Relational

No

Events and venues, Retail and hospitality, Transport, Workplace

Self-ID

Yes

No

Further info

Source URL

Privacy URL

Recipients

Employers

Hospitality sector

Leisure and entertainment sectors

Retail sector

Strengths

One of the better known schemes, with a relatively widely recognised symbol Easy to register, and some useful information on their website about several conditions.

Weaknesses

Further information

Overall functional rating

3. Transparency, choice and control

3.1 Transparency

The purpose of the lanyard is completely transparent

3.2 Choice and control

Full choice and control over when you wear/display the lanyard

4. Functionality

4.2 Structured data

4.3 Free text

The Sunflower Card lets you select up to five of 24 icons representing

4.4 Carer role

Not designed for proxy nomination. May not be relevant as it's designed to operate face-to-face.

4.5 Acknowledgement of receipt

N/A - the lanyard is intended for use face to face

4.6 Updates

n/a

4.7 Access to records

n/a

5. Reach

5.1 Multi-sector acceptance

There is a mapping facility on the website (https://hdsunflower.com/uk/find-the-sunflower) to help you find sunflower-friendly locations - these appear to be mostly supermarkets, banks, hotels and a few leisure facilities.

A separate area of the website identifies 25 airlines and 35 UK airports which have joined the scheme, along with National Highways, whose patrol officers have been trained.

A page headed "Healthcare" names several vaccination centres which recognised the sunflower during Covid, but this represents a tiny minority of NHS face-to-face facilities. The fact that the page is written in the past tense suggests that the sunflower is no longer actively recognised by NHS services, which warrants further inverstigation beyond the scope of this review.

Some GB rail operators are involved in the scheme (e.g. GWR - see https://www.gwr.com/travel-information/passenger-assist) but are not listed on the website.

5.2 Recipients within orgs/services

Person is able to show the card to those who need to see it.

5.3 Proactive sharing

The card is designed for the person to use in any situation they want to

6. Language and user experience

6.1 Language

Language is clear and non-judgmental

Words to watch

6.2 Conditions vs actionable support

No requirement for diagnoses/conditions to be shared, but the opportunity to do so if you wish.

6.3 Online UX

Website has some excellent content, but is rather haphazard in its design and navigability. When I applied for the Sunflower Extra card, not all ASNs could be selected.

6.4 Offline UX

No evidence of an offline alternative

7. Outcomes

7.1 Actionable support needs

List of ASNs is good but slightly less comprehensive than others and is focused on F2F experience. It may not give the coverage someone would need about how to communicate by phone or in writing.

7.2 Trustworthiness

Trustworthiness reinforced by clear messaging around the information you provide being treated with discretion and respect.

Think Local Act Personal: Data for People
Ratings against the 15 Principles

Overall

TLAP 2

TLAP 3

TLAP 4

TLAP 5

TLAP 6

TLAP 7

TLAP 8

TLAP 9

TLAP 10

TLAP 11

TLAP 12

TLAP 14

Money Advice Trust
Ratings against the 10 principles for designing vulnerable consumer data-sharing programmes

Overall

MAT 1

MAT 2

MAT 3

MAT 4

MAT 5

MAT 6

MAT 7

MAT 8

MAT 10-

Conditions/diagnoses identified
Actionable support needs identified
Support needs listed: Accessibiity: I have accessibility needs. Please ask me what they are. More time: I may need more time. Please be patient and keep calm - I may need more time to complete an action or to communicate with you. Cannot stand for long: I cannot stand for long periods of time. I may need a place to rest, especially if I am in a queue. Need a seat: I may need a place to sit down and rest. Stairs and ramps: Stairs/ramps are a barrier to me. Is there an accessible route? WC: I may need urgent access to the closest toilet facility. Please assist me without questioning. Carer: I have a carer/personal assistant. They provide support and will need to accompany me. Dog: I have an assistance dog. Please give me space: Please give me space. I need your help to keep social distance. Safe place: I need a quiet/safe place. Is there a safe/quiet space I can use? Sensitive to sound: I am sensitive to sound. Is there a quiet time or a quiet space? Sensitive to light: I am sensitive to light. Is there a time or space where the lights are dimmed? Sensitive to smell: I am sensitive to smell . Sensitive to smoke: I am sensitive to smoke. Sensitive to smoke: I may need help lifting or carrying. I may need help lifting or carrying Do not touch me: Physical touch can cause distress and pain. Sight loss: I have sight loss. I have limited vision and may find access to visual information or judging distance a barrier. Large print: I require large print. Braille: I use braille. Hearing loss: I have hearing loss. Face me, speak clearly but don’t shout and if necessary, write your message down. I sign: I sign. Assistive Listening: I use assistive listening. Audio Description: I use audio description. Food allergy: I have a food allergy. Hidden disability: I have a non-visible disability or several non-visible disabilities. Facilities listed (may be offered by a member organisation): Accessible fitting room Accessible parking spaces Accessible toilet Assistance dog friendly: We provide facilities for assistance dogs. Assistive listening Audio description Braille Changing Places toilet Companion/Carer access: Check the Hidden Disabilities Sunflower member’s website for details Large print Level access: Level access is available and may include the use of lifts Online tour: Become familiar with the Hidden Disabilities Sunflower member’s environment before your visit Physical guided tour: Book a guided tour of the Hidden Disabilities Sunflower member’s environment Quiet hour: Check the Hidden Disabilities Sunflower member’s website for details Safe/quiet space: Check the Hidden Disabilities Sunflower member’s website for details Seating available Sign language Step-free access: Access is step-free but may include ramps or slopes
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