top of page

Work in progress - ratings and comments are still to be finalised

This is Me

1.1 Stated purpose

'This is me' is a simple leaflet for anyone receiving professional care who is living with dementia or experiencing delirium or other communication difficulties.

1.2 Episodic or relational

2.1 Statutory notification

2.2 Info validated by

Sector

4.1 Personal identifier used

Online portal

Offline alternative

1.3 Data included

Relational

No

Health and social care

No

Yes

Address

Communication preferences

Reasonable adjustments

The roles they play in my life

The roles I want/need them to play

Formal and informal proxies

Advance Decision to Refuse Treatment

Lasting Power of Attorney

Cognitive impairment

The effect my health conditions/disabilities have on my day-to-day life;

Further info

Source URL

Privacy URL

Recipients

Care provider

NHS - Community Trust

NHS - Acute Trust

NHS - GP

Local Authority (U) - Social Care

Strengths

Similar in its approach to "About Me", but focused specifically on the needs of people living with dementia.

Prompts/headings are not quite as broad as "About Me", but include some thoughtful details which may be particularly important to people experiencing memory loss, such as the prompts for "My important items" and "What makes me feel better if I am anxious or upset".

Weaknesses

There seems to be a presumption that the person will be housebound or even bedbound, as it doesn't prompt for any specific information about their needs when out and about. This is reinforced by the references to helping professionals understand what the person needs in respect of their care, and by the statement that "The leaflet can be used in any setting – at home, in hospital, in respite care or in a care home."

Further information
A support tool to enable person-centred care. 'This is me' can be used to record details about a person who can't easily share information about themselves. For example, it can be used to record: - a person’s cultural and family background - important events, people and places from their life - their preferences and routines. The leaflet can be used in any setting – at home, in hospital, in respite care or in a care home. 'This is me' helps health and social care professionals better understand who the person really is, which can help them deliver care that is tailored to the person's needs. It can therefore help to reduce distress for people with dementia and their carers. It can also help to overcome problems with communication, and prevent more serious conditions such as malnutrition and dehydration.

Overall functional rating

3. Transparency, choice and control

3.1 Transparency

Purpose is transparent, but no privacy notice to confirm this

3.2 Choice and control

Choice and control over what you say and who you share it with

4. Functionality

4.2 Structured data

4.3 Free text

No structured data. Narrative data is similar in many ways to PRSB's About Me, but prompts are less comprehensive.

4.4 Carer role

No explicit prompts about the role a carer might play in the person's life

4.5 Acknowledgement of receipt

No provision made

4.6 Updates

Process allows for updates

4.7 Access to records

n/a

5. Reach

5.1 Multi-sector acceptance

Designed for health and social care, but could hypothetically be shared with (e.g.) a landlord. Relies on the person sharing the information or the document accompanying the person into a new setting (e.g. hospital admission).

5.2 Recipients within orgs/services

Since it's a written document, there would be no automatic flag on someone's record to show that the information exists. Evidence from PFD reports suggests it's too easy to ignore information in these situations.

5.3 Proactive sharing

Could be shared proactively.

6. Language and user experience

6.1 Language

Good use of language in the prompts to clarify what might be shared.

Words to watch

6.2 Conditions vs actionable support

No requirement for diagnoses/conditions to be shared

6.3 Online UX

No digital UX as no portal

6.4 Offline UX

Entirely offline

7. Outcomes

7.1 Actionable support needs

Likely to capture some ASNs but not all

7.2 Trustworthiness

Trustworthy based on intent

Think Local Act Personal: Data for People
Ratings against the 15 Principles

Overall

TLAP 2

TLAP 3

TLAP 4

TLAP 5

TLAP 6

TLAP 7

TLAP 8

TLAP 9

TLAP 10

TLAP 11

TLAP 12

TLAP 14

Money Advice Trust
Ratings against the 10 principles for designing vulnerable consumer data-sharing programmes

Overall

MAT 1

MAT 2

MAT 3

MAT 4

MAT 5

MAT 6

MAT 7

MAT 8

MAT 10-

Conditions/diagnoses identified
Actionable support needs identified
My full name Where I live The area (not the full address) where you live and how long you have lived there. The people who know me best This may include a partner, carer, relatives or friends. I would like you to know Include anything you feel will help staff to get to know and care for you. For example, ‘I prefer female carers’. My personal history, family and friends Include your place of birth, places you’ve lived or travelled to, marital status, children, grandchildren, friends and pets. My important items List any objects or items you like to have near you, such as photographs, jewellery or other treasured possessions. My culture, faith and religious beliefs Do you like to attend religious services? Do you celebrate certain festivals or events? Do you observe certain practices around prayer, food or clothing? My hobbies and interests List any hobbies you enjoy, such as clubs or crafts, and any favourite music, sport or TV/films that appeal to you. My jobs and achievements List any accomplishments that you are proud of, and any jobs or volunteering that are important to you. Favourite places I have lived and visited Include any former or childhood homes that you were fond of, and also any favourite or significant places that you have visited. My background The following routines are important to me What is your morning/evening routine? When do you prefer to have your meals? Do you enjoy a snack, walk or nap at a particular time of day? Do you carry out personal care activities in a particular order? Things I like to do for myself Include ways in which you like to be independent, such as dressing, eating, personal hygiene. Things I might want help with Describe ways people can help with activities such as dressing, getting up, eating. Things that may worry or upset me Include anything you may find troubling, such as being alone or feeling disorientated; or physical needs such as being constipated, thirsty or hungry. List environmental factors that may make you feel anxious, like open doors, loud voices or the dark. What makes me feel better if I am anxious or upset Include things that may help if you become unhappy or distressed, such as comforting words, music or TV. Does it help to have company, or do you prefer quiet time alone? My communication and mobility My hearing and eyesight Do you need a hearing aid? Do you wear glasses or need any other vision aids? How we can communicate How do you like to communicate? Do you read and write? How is it best to approach you? Include anything that may help others know what you need. My mobility Do you need help or an aid to get around? Can you use stairs? Can you stand unaided? What helps you to be comfortable? My personal habits Things that help me sleep Do you like a light to be left on or a warm drink before bed? Do you find it difficult to find the toilet at night? Do you have a favoured position in bed, special mattress or pillow? My personal care List your usual practices and preferences. Do you like to use certain cosmetics and toiletries? Do you need continence aids or help with brushing your teeth/dentures? What about caring for your hair? How I take my medication Do you need help to take medication? Do you prefer to take liquid medication? Eating and drinking What do you like/dislike to eat and drink? Do you have any dietary requirements or preferences including being vegan/vegetarian or any religious or cultural needs? Do you need help or adapted aids? Does your food need to be soft, liquidised or cut into pieces? Include information about your appetite, dentures and any swallowing difficulties. Other notes about me Include any details you’ve not already listed that you would like people to know, such as important events from your past. You can include any advance plans you have made, such as anyone you have appointed as your attorney.
bottom of page