Work in progress - ratings and comments are still to be finalised
This is Me
1.1 Stated purpose
'This is me' is a simple leaflet for anyone receiving professional care who is living with dementia or experiencing delirium or other communication difficulties.
1.2 Episodic or relational
2.1 Statutory notification
2.2 Info validated by
Sector
4.1 Personal identifier used
Online portal
Offline alternative
1.3 Data included
Relational
No
Health and social care
No
Yes
Address
Communication preferences
Reasonable adjustments
The roles they play in my life
The roles I want/need them to play
Formal and informal proxies
Advance Decision to Refuse Treatment
Lasting Power of Attorney
Cognitive impairment
The effect my health conditions/disabilities have on my day-to-day life;
Strengths
Similar in its approach to "About Me", but focused specifically on the needs of people living with dementia.
Prompts/headings are not quite as broad as "About Me", but include some thoughtful details which may be particularly important to people experiencing memory loss, such as the prompts for "My important items" and "What makes me feel better if I am anxious or upset".
Weaknesses
There seems to be a presumption that the person will be housebound or even bedbound, as it doesn't prompt for any specific information about their needs when out and about. This is reinforced by the references to helping professionals understand what the person needs in respect of their care, and by the statement that "The leaflet can be used in any setting – at home, in hospital, in respite care or in a care home."
Further information
Overall functional rating
3. Transparency, choice and control
3.1 Transparency
Purpose is transparent, but no privacy notice to confirm this
3.2 Choice and control
Choice and control over what you say and who you share it with
4. Functionality
4.2 Structured data
4.3 Free text
No structured data. Narrative data is similar in many ways to PRSB's About Me, but prompts are less comprehensive.
4.4 Carer role
No explicit prompts about the role a carer might play in the person's life
4.5 Acknowledgement of receipt
No provision made
4.6 Updates
Process allows for updates
4.7 Access to records
n/a
5. Reach
5.1 Multi-sector acceptance
Designed for health and social care, but could hypothetically be shared with (e.g.) a landlord. Relies on the person sharing the information or the document accompanying the person into a new setting (e.g. hospital admission).
5.2 Recipients within orgs/services
Since it's a written document, there would be no automatic flag on someone's record to show that the information exists. Evidence from PFD reports suggests it's too easy to ignore information in these situations.
5.3 Proactive sharing
Could be shared proactively.
6. Language and user experience
6.1 Language
Good use of language in the prompts to clarify what might be shared.
Words to watch
6.2 Conditions vs actionable support
No requirement for diagnoses/conditions to be shared
6.3 Online UX
No digital UX as no portal
6.4 Offline UX
Entirely offline
7. Outcomes
7.1 Actionable support needs
Likely to capture some ASNs but not all
7.2 Trustworthiness
Trustworthy based on intent
Think Local Act Personal: Data for People
Ratings against the 15 Principles
Overall
TLAP 2
TLAP 3
TLAP 4
TLAP 5
TLAP 6
TLAP 7
TLAP 8
TLAP 9
TLAP 10
TLAP 11
TLAP 12
TLAP 14
Money Advice Trust
Ratings against the 10 principles for designing vulnerable consumer data-sharing programmes
Overall
MAT 1
MAT 2
MAT 3
MAT 4
MAT 5
MAT 6
MAT 7
MAT 8
MAT 10-